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State Senator Keith Faber
Legislation
Raises Awareness About Krabbe Disease
COLUMBUS– Senate President Keith Faber (R-Celina) today announced the
Senate's passage of legislation to increase awareness for Krabbe
disease, an inherited disorder that damages the brain and nervous
system.
If enacted, House Bill 62 would designate the second week of September
as "Krabbe Disease Awareness Month." Krabbe disease is a genetic
disorder that destroys the protective coating of nerve cells in the
brain and nervous systems and manifests itself in symptoms that include
muscle spasms, loss of head control, unexplained crying and feeding
difficulties.
"I became aware of Krabbe disease when one of my constituents, Mrs.
Chasse Layton, lost her daughter Madison to the condition before her
second birthday," said Faber. "I was inspired to act on behalf of the
Layton family and countless others who have endured great loss."
Currently, the only effective way to combat Krabbe disease is to detect
it early. Faber introduced an provision into the state operating budget
to include screening for Krabbe disease in the newborn screening
program conducted by the Ohio Department of Health.
House Bill 62 passed the Senate with strong bipartisan support and now
goes to the Governor for his signature.
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